When to Call Your Care Team
Page your physician (617-632-3352) right away if you notice the following:
Do not use the Patient Gateway online portal for any urgent concerns or questions.
The patient may need to be admitted to the hospital to treat these symptoms.
If your doctor does not respond within 20 minutes, page again.
Notify your care team if you experience the following symptoms. These can be reported during normal business hours (weekdays from 9 a.m. to 5 p.m.).
When in doubt, always call your care team.
- Temp greater than 100.4°F
- ICE (Immune Effector Cell-associated Encephalopathy) score less than 10
- Chills or shaking
- Fainting
- Irregular or fast heartbeat
- Severe nausea, vomiting that prevents eating
- Diarrhea (more than 4-5 loose bowel movements per day)
- Changes in your thinking (confusion, hallucinations/seeing things that aren’t there, delirium/changes in their attention)
- Change in personality (patients not acting like themselves)
- Problems speaking or finding words, slower speech
- Seizure-like activity (body shaking/tremors, blank stare but not talking)
- Shortness of breath, difficulty breathing
- Severe or unusual headaches
- Blurry or double vision
- Bleeding from gums, nose, mouth
- Blood in urine, stool, or sputum
Do not use the Patient Gateway online portal for any urgent concerns or questions.
The patient may need to be admitted to the hospital to treat these symptoms.
If your doctor does not respond within 20 minutes, page again.
Notify your care team if you experience the following symptoms. These can be reported during normal business hours (weekdays from 9 a.m. to 5 p.m.).
- Pain or burning when urinating
- Difficulty going to the bathroom, either urination or bowel movement
- Cough, sore throat, runny nose, green or yellow sputum
- Lightheadedness, dizziness
- Muscle aches and weakness
- Redness, warmth, swelling, or any color fluid around venous catheter
- Red, painful, swollen, and warm to touch areas of the skin
- Any other skin changes or rashes
When in doubt, always call your care team.
- In an emergency, including loss of consciousness, sudden chest pain, or sudden trouble breathing, always call 911.
- Then, page your Dana-Farber physician.
- ALWAYS have your CAR T-Cell therapy wallet card with you and present it to any medical professional you see.